20th International Hemophilia Congress of Türkiye

MEDİCAL HALL

The International Hemophilia Congress of Türkiye
14.30 -16.00	OPENING SESSION Journey of Inherited Bleeding Disorders Chair: Cem Ar (President of THD), Adalet Meral Güneş (President of TPHD) Speakers: 14.30 – 14.55 Kaan Kavaklı 14.55 – 15.05 Mustafa Akyol 15.05 – 15.15 Fatma Bali 15.15 – 15.40 Bülent Zülfikar 15:40 – 16.00 Discussion
16.00 – 16.30	Coffee Break
16.30 – 18.00	HEMOPHILIA FORUM Our Priorities and Expectations Moderators: Bülent Zülfikar, Kaan Kavaklı Speakers: 1-Asım Hocaoğlu (TITCK President), 2-SGK Representative, 3-TEB Representative, 4-Devrim Aydoğan (TRHD Representative), 5-Berşan Kayıkçı (HF Representative), Industry Representative, Questions / Answers
18.15 – 19.30	OPENING CEREMONY Ergül Berber, Defne Ay Tuncer, Sare Bahar Zulfikar Speeches of Instutitions’ Heads MUSIC - Solo Speeches of NGOs’ Heads MUSIC - Choir
19.30 – 20.45	Welcome Dinner

8.00 – 9.00	Oral Presentation (TR) Chair: Murat Söker, Aylin Canbolat Ayhan, Neslihan Andıç 08.00 – 08.10 SS001 Von Willebrand Hastalığında Genetik Tanı: Ara sonuçları Seda Kılıç Erciyas 08.10 – 08.20 SS002 Kalıtsal Kanama Bozukluğu Tanısı Alan Adölesan ve Genç Erişkinlerde Eklem Sağlığı, Fiziksel Aktivite Düzeyi, Ağrı ve Hareket Korkusu Arasındaki İlişki Tuğçe Poyraz İşleyen 08.20 – 08.30 SS003 Pediatrik Hemofilili Hastalarda Denge ve Postüral Salınımların İncelenmesi Tuğba Gönen 08.30 – 08.40 SS004 Hemofili Gen Tedavisi Öncesinde Yapılan Tarama Testlerinde AAV - Antikoru Seroprevalansı: Türkiye Hemofili Gen Tedavisi Çalışma Grubu Sonuçları Kaan Kavaklı 08.40 – 08.50 SS005 Hemlibra Türkiye Gerçek Yaşam Verisi Özlem Tüfekçi 08.50 – 09.00 SS006 Eklem İçindeki Kanın Hangi Kısımı Kanın Zararlı Etkilerinden Sorumludur? (Tavşanlarda Diz Ekleminde Deneysel Çalışma) Elcil Kaya Biçer
9.00 – 9.30	Industry Session 1 Chair: Bülent Zülfikar Speaker: Maria Elisa Mancuso
9.30 – 10.15	Industry Session 2 Chair: Kaan Kavaklı, Bülent Zülfikar Speakers: Selin Aytaç, Fahri Şahin
10.15 – 10.45	Coffee Break
10.45 – 11.30	Industry Session 3 Chair: Kaan Kavaklı Speakers: Cem Ar, Canan Albayrak
11.30 – 12.15	Industry Session 4 Chair: Bülent Zülfikar, Kaan Kavaklı Speakers: Alphan Küpesiz, İlgen Şaşmaz, Emine Türkkan
12.15 – 13.30	Lunch Break
13.00 – 13.30	Poster Presentation Erol Erduran, Hüseyin Tokgöz
13.30 – 14.15	Industry Session 5 Chair: Mehmet Sönmez, Namık Özbek Speakers: Can Balkan, Tekin Güney
14.15 – 14.45	Industry Session 6 Speakers: Bülent Antmen, Kamuran Karaman
14.45 – 15.15	Coffee Break
15.15 – 15.45	Industry Session 7 Chair: Muzaffer Demir Speakers: Başak Koç Şenol, Yılmaz Ay
15:45 – 16:15	Industry Session 8 Chair: Bülent Zülfikar, Kaan Kavaklı Speakers: Ekrem Ünal
16.30	DEPARTURE BY BUSES
17.00	DEPARTURE BY BOAT

MEDICAL HALL
8.00 – 9.00	Oral Presentation (ENG) Chair: Ergül Berber, Serap Karaman, Dilek Gürlek Gökçebay 08.00 – 08.10 OP001 Advanced Molecular Analysis in Hemophilia in a Single Step: Next Generation Sequencing (NGS) and Copy Number Variation (CNV) Analysis Enise Avcı Durmuşalioğlu 08.10 – 08.20 OP002 The Assessment of Joint Health in Children Diagnosed With Hemophilia on Prophylactic or On-Demand Treatment Ayşegül Ünüvar 08.20 – 08.30 OP003 Chemical Synovectomy Treatment Protocol With Rifampicin in Hemophilia Patients Mehmet Can Uğur 08.30 – 08.40 OP004 Pharmacokinetics of Factor IX With One - Stage and Chromogenic Assay in Hemophilia B and Clinical Outcome Fatih Aydın 08.40 – 08.50 OP005 Desmopressin Trial in Von Willebrand Disease Başak Koç 08.50 – 09.00 OP006 What is the Effect of Bevacizumab on Cartilage and Synovium in a Rabbit Model of Hemophilic Arthropathy? Gökhan Polat
9.00 – 10.30	Gene Therapy in Hemophilia - Panel Chair: Bülent Zülfikar, Kaan Kavaklı
	9.00 – 9.30	Hemophilia A – Gene Therapy Speaker: Margareth Ozelo (Campinas – Brazil)
	9.30 – 10.00	Hemophilia B – Gene Therapy Speaker: Yeşim Dargaud (Lyon - Fransa)
	10.00 - 10.20	Hemophilia A/B in Türkiye - Gene Therapy Speaker: Kaan Kavaklı
	10.20 - 10.30	Discussion
10.30 – 11.00	Autoimmune Bleeding Disorders - Conference Chair: Fahri Ovalı, Özcan Bör Speaker: Özgür Kasapçopur
11.00 – 11.30	Coffee Break
11.30 – 13.00	New Treatments in Hemophilia - Panel Chair: Yeşim Dargoud, Sinan Akbayram
	11.30 – 11.45	Mechanisms of Action of Natural Anticoagulants in The Treatment of Hemophilia Speaker: Başak Koç Şenol
	11.45 – 12.00	FVIII Mimetic Drugs (Emicizumab, Mim8) Speaker: Canan Albayrak
	12.00 – 12.15	Fitusiran Speaker: Bülent Antmen
	12.15 – 12.30	Marstacimab Speaker: Can Balkan
	12.30 – 12.45	Concizumab Speaker: Alphan Osman Küpesiz
	12.45 – 13.00	Discussion
13.00 – 13.30	Poster Presentation Chair: Hüseyin Gülen, Elif Ümit
13.15 – 14.30	Lunch Break
14.00 – 14.15	Awards Ceremony
14.30 – 16.00	Musculoskeletal Problems – Panel Chair: Bülent Alioğlu, Gökhan Polat
	14.30 – 14.50	Bone Metabolism in Hemophilia Speaker: Çiğdem Aktuğlu Zeybek
	14.50 – 15.05	Hemophilia Ultrasound Speaker: İpek Tamsel
	15.05 – 15.20	Hemophilia MR Speaker: İnci Kızıldağ Yırgın
	15.20 – 15.40	Prosthetic Operations and Their Results Speaker: Elçil Kaya Biçer
	15.40 – 15.50	Physiotherapy Speaker: Tuğçe Poyraz
	15.50 – 16:00	Discussion
16.00 – 16.20	Coffee Break
16.20 – 17.00	von Willebrand Disorder and Rare Diseases - Panel Moderators: Zühre Kaya, A. Fatih Aydın
	16.20 – 16.40	vWD Diagnose Difficulties Speaker: Güneş Ak
	16.40 – 17.00	Acquired Hemophilia and Its Management Speaker: Cihan Ay (Vienna- Austria)
17.00 – 17.45	Global Hemophilia - Conference Chair: Nazan Sarper, Cihan Ay Speaker: Glenn Pierce (USA - WFH Medical Vice President)
17.45 – 18.00	CLOSING